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Scleroderma Canada

41 King William St., Suite 203
Hamilton, Ontario L8R 1A2
Toll Free 1-866-279-0632
info@scleroderma.ca

www.scleroderma,ca

Scleroderma-Society-Canada-Societe-Canad

SPIN Researchers

 

The SPIN team consists of professionals with a wide variety of backgrounds, patient advocates, trainees, and support staff. For more information about these individuals, please click the following link: https://spinsclero.com/en/teams-committees


                                                       

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

To support her work in SPIN, Linda received a Post-doctoral Fellowship from the Fonds de la Recherche en Santé Québec (FRSQ; 2013-2015) and was awarded the prestigious Banting Postdoctoral Fellowship from the Canadian Institutes of Health Research (CIHR; 2015-2017).

Dr. Brett Thombs

Director of SPIN

                                                       

Dr. Thombs and his team focus on developing strategies to improve quality of life      and reduce disability among people living with scleroderma. He is the Founder           and Director of the Scleroderma Patient-centered Intervention Network (SPIN), a      patient-researcher collaboration that maintains an ongoing cohort of > 2,000              patients from over 40 sites in 7 countries and conducts trials of patient-centered        tools to support coping with scleroderma. Among his over 250 peer-reviewed            publications, Dr. Thombs has authored > 80 on patient experiences and                      outcomes in scleroderma. He has been PI on over $3.5 million in funding for              patient-oriented research in scleroderma.

Dr. Linda Kwakkenbos

Co-Director of SPIN

 

Dr. Linda Kwakkenbos is the Co-Director of the Scleroderma Patient-centered        Intervention Network (SPIN). After completion of her PhD in Social Science at              Radboud University, the Netherlands, in the summer of 2012, Dr. Kwakkenbos started working with Dr. Brett Thombs at McGill University. She initially coordinated the SPIN project, and was later named Co-Director. Linda manages the project on a day-to-day basis with Dr. Brett Thombs and Marie-Eve Carrier.

 

Dr. Kwakkenbos is currently a Lecturer and Researcher at the Behavioural Science    Institute of Radboud University. She teaches in a number of courses in the                  Psychology Bachelor and Master programs, including research, communication and  diagnostic skills trainings. Dr. Kwakkenbos’ research focuses on the development and testing of patient-reported outcome measures, novel research methodologies, and the development of interventions that help contribute to better disease management in chronic diseases, focusing on rare diseases.