The SPIN team consists of professionals with a wide variety of backgrounds, patient advocates, trainees, and support staff. For more information about these individuals, please click the following link: https://spinsclero.com/en/teams-committees
To support her work in SPIN, Linda received a Post-doctoral Fellowship from the Fonds de la Recherche en Santé Québec (FRSQ; 2013-2015) and was awarded the prestigious Banting Postdoctoral Fellowship from the Canadian Institutes of Health Research (CIHR; 2015-2017).
Dr. Brett Thombs
Director of SPIN
Dr. Thombs and his team focus on developing strategies to improve quality of life and reduce disability among people living with scleroderma. He is the Founder and Director of the Scleroderma Patient-centered Intervention Network (SPIN), a patient-researcher collaboration that maintains an ongoing cohort of > 2,000 patients from over 40 sites in 7 countries and conducts trials of patient-centered tools to support coping with scleroderma. Among his over 250 peer-reviewed publications, Dr. Thombs has authored > 80 on patient experiences and outcomes in scleroderma. He has been PI on over $3.5 million in funding for patient-oriented research in scleroderma.
Dr. Linda Kwakkenbos
Co-Director of SPIN
Dr. Linda Kwakkenbos is the Co-Director of the Scleroderma Patient-centered Intervention Network (SPIN). After completion of her PhD in Social Science at Radboud University, the Netherlands, in the summer of 2012, Dr. Kwakkenbos started working with Dr. Brett Thombs at McGill University. She initially coordinated the SPIN project, and was later named Co-Director. Linda manages the project on a day-to-day basis with Dr. Brett Thombs and Marie-Eve Carrier.
Dr. Kwakkenbos is currently a Lecturer and Researcher at the Behavioural Science Institute of Radboud University. She teaches in a number of courses in the Psychology Bachelor and Master programs, including research, communication and diagnostic skills trainings. Dr. Kwakkenbos’ research focuses on the development and testing of patient-reported outcome measures, novel research methodologies, and the development of interventions that help contribute to better disease management in chronic diseases, focusing on rare diseases.