WHO WE ARE

A little bit about Scleroderma Canada.

Scleroderma Canada is a CRA registered national charity serving the Canadian scleroderma community. We are the national advocate for those affected by this rare and difficult disease. Established in 1999, we have worked collaboratively with regional and international organizations to bring health care research, education and clinical care together to ensure those affected by scleroderma have access to the latest advances in care. 

By engaging in activities aligned to Scleroderma Canada’s core pillars (Patient Support, Research and Awareness), we will work towards:

  1. Developing patient education and bring patients together in peer to peer groups

  2. Granting research funding requests and facilitating grant requests for external research funding

  3. Increasing awareness of Scleroderma through out annual campaigns and activities planned across Canada

  4. Advocacy

Letter from our President, Jason Doucette

Scleroderma Canada continues to have a strong national and international presence, advocating for patients and families living with this progressive, chronic and debilitating disease.

 

I am thrilled to be working with an amazing board, dedicated volunteers and a committed team of national and international health professionals. We have established our reputation as a leading voice for scleroderma patients and we continue to provide leading-edge resources to both patients and health professionals.

 

Our community engagement has achieved outstanding results as evidenced by our successful ‘Hard Word Harder Disease’ campaign, strong participation rates in our annual conferences and growing involvement in local walks/runs. In addition, our distribution of the Scleroderma Canada magazine continues to grow, allowing us to share the latest in research, advocacy strategies and inspirational stories in both print and electronic formats, thereby effectively reaching communities across the nation.

 

Scleroderma Canada will continue to engage in advocacy, support research and work with provincial, national and international partners to disseminate current and relevant information on scleroderma. I invite you to join us at our annual national conference to learn from and engage with patients, health professionals and researchers in the field of scleroderma.

 

Jason Doucette

President Scleroderma Canada

Board of Directors

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SPIN
500 TSP
Pulmonary Hypertension Association of Canada
ACC
CSPA
CSRG
CORD
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Scleroderma Sask

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