Scleroderma Society of Canada: Press Releases

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News and Press Releases

23/05/2010 Walk in the Park for Scleroderma, Gatineau, Quebec Read more

25/02/2010 FINAL version of the Patient Survey Report Read more

25/02/2010 First World Scleroderma Conference A Great Success Read more

31/01/2010 World Scleroderma Conference in Italy Read more

28/01/2010 2010 Conference Read more

11/09/2008 SSC and CSRG National Patient Survey - Results Read more

07/05/2008 Fundraising and Donations Read more

03/05/2008 Fundraising From Printer Cartridges Read more

28/04/2008 New Book Read more

10/02/2008 New CSRG Website Read more

30/04/2007 Major Funding for Scleroderma Research Read more

01/02/2007 Newsletter on the website Read more

SSC and CSRG National Patient Survey - Results

From November 2008 to April 2009 people with scleroderma who were interested in shaping the future of research in this field took time to answer….

THE SCLERODERMA SOCIETY OF CANADA and THE CANADIAN SCLERODERMA RESEARCH GROUP PATIENT SURVEY

The objective was to find out what issues are important to individuals living with scleroderma in order to direct our research agenda. This survey had questions about the symptoms that people with scleroderma might experience, as well as psychological, social, employment, and financial issues, and issues related to the ability to obtain appropriate healthcare.

Respondents completed the CSRG/SSC Patient Survey either online or on paper.

Survey results are now available. To view the Patient Survey Report click here.