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Helen Goerzen


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Helen Goerzen - Secretary

In 1969, I got married, attended University of Manitoba and shortly after in1973, my husband and I began teaching. I stopped teaching about 7 years later to have two kids, then resorted to substitute teaching for many years while the kids were growing up and  eventually going back to full-time teaching.

After years of sore hands with digital ulcers, heartburn, esophagus, stomach and bowel issues, I was diagnosed with CREST and systemic Scleroderma in 1997 but managed to do most of the things that I wanted to do in spite of Scleroderma. But In March 2007, Scleroderma was the cause of the end of my teaching.

My doctor had been suggesting that I stop teaching several years before that, but, I was not listening to him. One of my Grade 2 students told me, "You have to listen to your doctor!" Eventually, I did. I have had extensive problems with finger ulcers, toe and foot ulcers and all of the other Scleroderma stuff. Right now, I am doing OK or it is "as good as it gets". I feel I have a positive attitude with lots of determination, a strong faith in God, an amazing support base from family and friends, plus competent and caring doctors.

When I was first diagnosed with Scleroderma I attended a few of the Scleroderma Manitoba chapter meetings but..... I quit going to meetings because I was too depressed with what I saw was coming for me when I looked at the other people who were attending the meetings.

What has changed my mind is this: Over the past years, I have been involved in the Relay for Life Cancer Walk. When I saw all of the support that Cancer patients, survivors and their families receive, I became very jealous!!! Why them and not me and others who have Scleroderma? I decided that I could try and change this - both for me and for others who have Scleroderma. That's why I want to volunteer. I want to do my part. In a small way, serving on the Board of Directors with the Scleroderma Society of Canada is my way of helping others who are dealing with Scleroderma.

 Here is a list of several areas that I have been involved in over the years:

A member of the local teachers’ Professional Development Committee organizing PD days, secretarial work for monthly local teachers' association meetings and compiling minutes for our monthly school staff meetings, member of Literacy Committee for our local teachers' association, plus just teaching my class - mostly I have taught Grade 2 with a bit of Grade 1 plus anything up to Grade 4 - Wherever! Whatever! Whenever!

Volunteering as a secretary for our church council meetings, volunteering as church chair for our church council meetings, teaching Sunday School and being the superintendent for Christian Education in my church, Grace Mennonite in Steinbach as well as volunteering as a member of the board for our local Jake Epp Library.

Then in November, 2009 all of this came crashing to a halt as I suffered a major heart attack plus a cardiac arrest. Thankfully and miraculously, doctors in Steinbach and Winnipeg were able to save my life and put me back together again!

The past several winters, my husband and I have followed what most Scleroderma pamphlets tell you to do about Scleroderma - "move to a warm climate!"  We have spent some time in Texas and for the past 3 years, we spend winters at The Good Life RV Resort in Mesa, Arizona with my identical twin sister and her husband. She has Scleroderma as well. (Hey, maybe I can get her to volunteer!) We both do much better in a warmer more temperate climate.

Hope that this helps you "to put a face to my name".

Helen Goerzen