How Can I Help?
World Scleroderma Day

World Scleroderma Day - June 29, 2018

What is World Scleroderma Day?
June 29th is recognised around the world as being World Scleroderma Day. This date is an opportunity for anybody who has been affected by scleroderma, either through diagnosis or through friends and/or family, to join together and help raise awareness by shining the spotlight on this rare disease.

Scleroderma or systemic sclerosis is a chronic, progressive connective tissue disease characterized by fibrosis (thickening and hardening) of the skin and internal organs. Derived from the Greek words “sclerosis” meaning hardness and “derma” meaning skin, scleroderma literally means hard skin. The actual date, June 29th, commemorates the date when the gifted Swiss-German artist,

Paul Klee (1879 – 1940) died. Klee’s work was, and still is admired around the world today.

His main work focus was movement and fluidity, with him writing in 1920, “Motion is at the root of all growth”. His diagnosis of diffuse scleroderma would have severely impeded his personal movement, and it is this, his symptoms, which are thought to have inspired his later work, which was block based themed.

How Can I Help

There are many ways to get involved with World Scleroderma Day, here are a few ideas!

• Change your social media (Twitter / Facebook etc) cover photo and profile photo using the toolbox that can be found at www.hardword.org

• Share your photos and stories with us using #Scleroderma and #WorldSclerodermaDay

• Contact your local media / radio / paper to give an interview or an awareness feature

• Look into having a landmark near you (ie. Bridge, city hall, significant building, etc.) being illuminated blue for World Scleroderma Day

• Wear blue and post your photos on social media event pages (using the same hashtags!)

• Look into organising a walk if there aren’t any available walks near you – contact us for more information!

 


Back to top

Stay In Touch With Us

Make A Difference

Leave A Legacy

Support our mission with a charitable donation and enjoy the tax benefits. We have a number of giving opportunities for you to choose from.